Showing posts with label changes. Show all posts
Showing posts with label changes. Show all posts

Wednesday, September 7, 2011

Share Your Story: 9-11 Memories

With all of the stuff out there about the 10th anniversary of 9-11-2001, I have taken the time over the past week or so to go back and think about what 9-11 really meant to me on a personal level.  I have been surprised at how much that moment in time and circumstance really did change my life.
So I invite you to share your own memories of this event along with me. 
Think about what it meant to you as an individual and as a part of a family or group.
Were there things that came out of this for you that were good as well as bad?
Do you live near or far from where the events of that day unfolded?
Did it affect your life in a 'bigger picture' sort of sense?  Or was it harder to identify with?
Give it some thought.  You may find yourself just as surprised as I was.  Really.

To join in, please link to my post that will be published on Friday, September 9th at midnight Pacific Daylight Savings time.

Friday, May 13, 2011

The Thing That Changed Everything

**WARNING, EXPLICIT MEDICAL DETAILS, READ AT YOUR OWN RISK**
-may be disturbing to some readers

**Secondarily, this post has become extraordinarily long.  I have tried to edit things down, but decided that I wanted to post this as is.  It is important to me, but I understand if it goes beyond what you are willing to endure for a story.   What a day to post THE longest and most difficult post I've ever had, only to have it lost! (for a while)  Do I have timing or what?!**


About 7 years back I made some really difficult choices.  These choices are hard to explain and even harder to justify in some cases, but they were necessary.  I won't go into that right now.  I just wanted to find a place to start that seems to offer some sort of background as to what was going on in my world before I got to the moment that really did change everything...

So there I was, thinking that I was doing a pretty decent job of taking charge of my life and starting to actually live in a meaningful way.  After a couple of years of sort of readjusting my world, and over a period of about 5 years I went through a process that included clearing out that last level of clutter.  You know, the level you think you might never get down to.  The one that goes beyond any comfort level.  The one that includes not just physical junk, but a manner of cleaning out all types of psychological trash along the way.  I got rid of those 'friends' that weren't really true.  Let things that I thought were a comfort, but really just had me stuck in the past, go.  I started replacing those 'tapes' that rolled in my head with newer more positive messages.  I forced myself to try new things that I thought would never be 'me'.  (Not all of those things worked out so well!)  Overall, I decided that anything that was more of a negative than a positive in my life just simply had to go.  I was ready to admit to the life that I had really always wanted, no matter what anybody else thought, no matter how much outside of the norm I would be.  (Who the heck are those average Americans everybody is always polling anyway?  Nobody ever interviews me.)

It had been a beautiful sunny day.  My husband and I were in New York City.  New York has never been my favorite place, but we were showing 2 friends who had never even been away from the West Coast a thrilling time in the Big Apple.  We were on a trip that had been planned for months and we were going to see my husbands best friends brand new baby.  As we neared the home of the new parents we got a call from them asking if any of us had been sick lately.  Typical worried new parents!  But it was then that my husband admitted that he had not been feeling quite right all day.  In fact, he had been a little nauseous and bloated.  He thought maybe he had food poisoning or something.  His friend didn't want to take any chances so we ended up at a Walgreen's picking up an instant-read thermometer.  Everybody took their turn and we all checked out with normal body temperatures.  After all that, my husband decided that he was feeling better and the stomach pains had passed.  We had a lovely visit with the sweet new baby and it was so special to see such a proud Papa. 

After that, it was more sightseeing.  Experiencing nightlife in the Big Apple for the first time was so exciting for our friends.  Time passes fast in the 'City That Never Sleeps' and before we knew it we were about to miss the last bus out to get back to our hotel.  We barely made it back to the bus station and I noticed that my husband wasn't really keeping up with us.  That was just not like him.  It turns out they send more than one bus back for each line at the end of the night, so we waited for the second one rather than crowd onto the first bus.  As we sat waiting on a bench I realized that maybe there was something more than indigestion going on with my husband.  I asked him if he thought he should see a doctor.  He said he wasn't sure.  I immediately pulled out our medical card and got on the phone.  I found out that since we were traveling out of state, we should just go straight to an ER rather than try to find a clinic of some kind.  By the time the bus came, I was antsy to get back to suburbia so we could get to a hospital near our hotel room.

Our friends wanted to go with us to the ER, but I wanted them to get a decent nights sleep as we would be driving out to Connecticut to see my husbands sister early the next morning so they returned to the hotel while my husband and I went to the nearest hospital.  It turned out that there was a blue H sign right next to our hotel and we set out following a series of these.  After about 20 minutes of driving around, I realized that I was beginning to recognize the same landmarks all over again.  By this time we were both tired and I asked my husband if he thought we should just go back to the hotel and get some sleep before trying for the hospital again in the morning.  He said that he thought we could find it if we just tried a little bit more.  I knew then that something must really be wrong.  Just after that, we did find the hospital.  Somehow, it was right there in front of us with an empty spot right at the door to the ER.

I expected a long wait inside, but there was hardly anyone there.  The nice guy at the front desk noticed my panicked look and reassured me that if anything was really bad my husband would be 'doubled over in pain'.  He felt sure that we would be in and out in no time.  Next we were put into a large holding area type room with curtains drawn between patients.  It turns out we were not in the best part of town and there was actually a guy handcuffed to a bed with two police officers at his bedside and another that kept wandering around exposing himself to people.  After a little while, we got a little more relaxed and sort of enjoyed the people watching.  My husband went through the usual tests- blood, urine, physical exam and nothing came up abnormal, other than some loose stools.  His temp was normal just as it had been earlier in the day.  The doctor was pretty certain that he did indeed have a case of food poisoning or 'travelers diarrhea'.  My husband was given fluids as he was a bit dehydrated and was just about to be released when the doctor decided to do an x-ray of his abdomen, just to be sure since we were traveling and all.

The moment that x-ray was put up in front of the light on the wall, I didn't need any instruction to be able to see that something was very wrong.  The intestines were all distended and there was clearly something blocking the digestive tract.  Suddenly there was an immense urgency in the room.  Several doctors all stared at the x-ray as if they could not believe what they were seeing.  Then they began prepping my husband for an emergency CT scan and told me he would be going straight to surgery after that.  They also shoved NG tubes into his nose and started pumping out this awful fluid.  I couldn't even think.  The nurses told me to take any valuables as they had a way of disappearing around here and took me through a maze of doors so that I could see my husband just prior to his surgery. 

After the CT scan, my husband was wheeled into the room where I was waiting.  There was an anesthesiologist with him who was explaining that there was no time to wait for his stomach to empty and that they would have to intubate him.  We were told that this was very serious and that there was a mass in my husbands abdomen that was preventing the passage of normal digestion and that it could kill him if they did not remove it.  They were able to see that the mass was not moveable by any other manner via the CT scan and the intestines were so distended that they could rupture at any moment.  Naturally, I thought he must have colon cancer or something, but I did not ask about that.  All I wanted was for him to be O.K. for right now.  I just wanted a little more time with him.  I kept asking God or whoever would listen to my pleas inside my head for this to just NOT be cancer.  In my own selfish thoughts, I didn't think I could take that.  As my husband was moved into the operating room they let me stay with him until after they put him under.  I thought this was strange and heard one of the nurses tell the other to let me stay and have my goodbyes.  Then another piped up and said this was not goodbye.  She told me that the doctor they called in was the best and that if anyone could save my husband, he would.  I could not believe this.  How did I go from a bright day as a tourist to this?

I was led back out and left in a row of chairs in a daze.  I didn't know anything except that I was so glad that I was not alone.  I could call my friends.  They were just a short distance away.  During the planning of the trip there had been a time when we were going to be going to New York on our own, but fatefully our friends had decided to join us.  They came to be with me in a flash and didn't ask questions.  Somehow they both knew just what I needed in that moment.   After 4 long hours, a doctor came through the double doors.  He was a tiny East Indian man with such a gentle demeanor.  By this time I really had it in my head that I just wanted to hear that this was NOT cancer.  Sometimes the mind can get stuck on a stupid detail.  So there I was just begging for him to tell me that.  My wish was somehow granted.  There was no cancer!  But wait, how could he know that so soon?  How could he be so sure?  It turns out that when I got over the initial euphoria of hearing that there was no cancer, there was some other news that was a bit more sobering.  The doctor informed me, in his lilting accent, that "another 12 to 24 hours and I could not save him."  My mind went reeling again as this idea settled in.  What if we had decided to go back to the hotel and rest?  What if we had been back at home and decided to wait until Monday so we could avoid going to the ER?  What had just happened?  How did this happen?  

The doctor would answer the questions that he could in due time, but he wanted me to see that my husband was indeed still alive and much better than he had been only a short time ago.  A short time ago when none of us had realized that this was such a serious thing at all...  So I was taken into recovery and greeted by several doctors and nurses with huge smiles on their faces.  You could feel the relief in the room and we all shared a laugh as my husband started in talking about how it was very important for him to get back to work right away and that he needed to take care of things, in a very drugged out voice.  They told me he had been repeating that over and over.  Then the doctor finally started to explain to me what had happened.  It turns out the diagnosis would be truly unique and complicated.  My husband was found to be the one of a kind man that I know him to be, in every way. 

You really never know just how things in the universe line up as they do.  I just know that if I had ever doubted that there was a purpose and a meaning to this life higher than mere existence, all doubts left me that day.  This doctor had trained in India as an intensivist.  Then he had specialized in gastrointestinal surgery in the U.S. and had done most of his work with the elderly and more recently victims of gunshot wounds.  (In the daylight the neighborhood we were in was much more clearly NOT the good side of town.)  In all of his experience this doctor had never seen anything quite like what had happened here.  But his experience and expertise were just what was needed.  The 12-24 hour comment came from the fact that there were several things going on, any one of which could have killed my husband almost immediately.  He had a baseball sized abscess that was very near rupture within his abdominal cavity but not inside the intestine, he had multiple adhesions that had wrapped themselves all around the abscess and eventually cut off progress of fluids through the small intestine, and peritonitis had set in.  As well as the initial danger from possible rupture of the abscess or intestine, any one of these could have become a life-threatening septic condition.  So how on earth was all this going on without my husbands knowledge?  Well, that part is left to theory.
      Here's what we do know:  1) He has a ridiculously high tolerance for pain that probably grew slowly over time along with the illness.  2) He is one of the very small percentage of the population that does not respond to infection with a fever or a high white blood cell count.  (Some researchers have found that these people are often on the autism scale as well.)  3) He was born without an appendix.  (Since all of his intestines had been outside of his body during the surgery and searched thoroughly we can be sure that my husbands best friend is correct when he guesses that my husband is just a little bit more advanced than the rest of us.  His friend is a biology teacher, after all.)  4) Since the abscess was outside the intestines, the only reasonable guess as to what caused the initial infection is probably E-Coli which comes in many forms and can and will invade the body anywhere.  (Several other doctors expressed this guess to us as well when we got back home.)  And finally- 5) There is no way to know when or where this E-Coli would have infected him as people can live for years with an abscess that has been encapsulated inside adhesive scar tissue and is like a ticking time bomb that can burst at any time.

My  husband spent 3 days in ICU and another 5 in the hospital being pumped full of every type of antimicrobial agent you can imagine since we really had no way of knowing for sure what it was that had invaded his body.  Once we knew that he would be strong enough to fly back home, he left the hospital with 20 staples and 3 retention sutures in his gut.  The physical effects that ended up following my husband for months (and now years) after this were nothing compared to what this did to our souls.  This absolutely rocked my world.  It shook me to the core. And it made my husband believe that maybe he should not expect to live a long, normal life even though we had been assured that this whole thing really shouldn't affect his life expectancy at all.  It was so hard to see the person who had been there for me and provided me with the strength that I had so badly needed in such a place of uncertainty.  I was suddenly very aware of what it must be like to be told that a loved one has been hit by bus, but has survived.  Only to be told later that the person will never be quite the same ever again.  Over that summer, I watched my husband go through some of the most difficult emotional times.  Things that I simply never could have imagined.  His body had betrayed him.  (This person that everyone had always described as the neatest, cleanest guy that they ever knew had been compromised by bacteria.)  Neither one of us knew what to trust, where to turn.  Life, that had been moving along on an expected plane, had just moved to a whole new universe.  Nothing was certain and nerves were so raw and exposed.  We both had grown up with very uncertain home lives and had come to expect that as adults we would be able to control our surroundings and live in relative stability.  This had shattered our senses and left both of us searching for a new normal.

For myself, I found that it really was time to grow up.  For all the time that I had spent being a 'little adult' when I was a kid, I had somehow thought that I would be able to make up for that in my own life on my own terms.  But really I had just ended up leaning heavily on my husband for the stability that I had so badly needed.  This had left him empty of the ability to really feel his own emotions.  It was never safe for him to be a little off, even for a day, because I had needed so much from him.  My guilt was immense and yet I was a little scared of this new emotional man in my life.  The truth is that as much as I had needed him to be the one solid thing in my life, he had needed me to be there to take care of him and to feel, when he was not ready to do that yet.

Over time, we both have grown stronger in this new life that has been thrust upon us.  Individually, we have learned how to do the things that we had leaned on one another for, for over a decade.  I, who have always been so independent anyway have learned that if I needed to I could make it all on my own.  And my husband who has never let anything ever get to him seems to be more comfortable with the idea that sometimes you have to embrace and feel the fact that the world can be a scary place.  We have seen that our individual weaknesses can be dealt with best with the unconditional love we share for one another.  We have each grown grateful for the gift that is knowing that you never really do know what tomorrow brings and that any one of us can be gone from this earth at any time. 

My husband will require more surgery to deal with some residual issues left from such invasive initial emergency surgery and we have been putting that off.  There have been so many opportunities to get past this time in our lives and come out stronger- we have pursued things that we never thought possible and made life decisions that we once only discussed in passing and had put off for 'someday'.  During this process there was a song that had come out that summer of 2009 that my husband gravitated towards.   I can remember him stopping whatever he was doing to sing along every time he saw the video played on TV.  If you've made it this far into this ultra-long post, then you owe it to yourself to share in a little bit more of our lives by clicking on the link below:  Oh and thanks for reading, this post is very important to me.

I'm Alive/ Kenny Chesney and Dave Matthews 

Wednesday, December 1, 2010

New Perspective

I got that call I was waiting for, on Monday afternoon.  The prosecutor called to let me know the outcome of my mother's sentencing hearing for her felony domestic violence assault conviction. 
The results in rational terms: 6 months in jail, 88 hours of community service, 3 years of probation, various fines, will never be eligible to work with kids, the elderly, etc.  She must pay for counseling for the minor child that witnessed her behavior until he is 18.  She must have a psychological exam and pay for and stay current with any treatment that is prescribed. 
The emotional toll: I had pretty much prepared myself for the guilt and sorrow that I knew would come.  What I never saw coming was the anger and disgust.  The prosecutor took the time to go over the whole hearing with me, line by line.  She felt that I needed to know what had happened because she wants to be sure that I get through the reality of just how bad my mother's mental issues are and how that still might effect me.  I have to say that this prosecutor has been so good to me.  She has taken extra time and energy to truly help me through this.  One particular issue that has cropped up in the past that involves me is that my mother sometimes believes that she is me.  She has even been known to commit petty crime and give my name.  Apparently, the hearing had to be stopped twice so that things could be clarified for my mother.  She felt that the papers that the judge was reading, that I had sent in, were all just things that I meant to say about my sister, not her.  Then she said, "that's O.K.  I understand because I used to be her."  My mother honestly believes that she groomed me so well that I am not capable of saying anything negative about her, that everything I wrote was meant to be directed at my sister.  She is also still convinced that we are the same person.  She has spoken many times about how she used to be me and she is not speaking metaphorically.  My mother means that we are one and the same person, as if I am some part that has broken away and needs to be reined in. 
If you are not totally weirded out at this point, then I'm sure you are starting to get why this is so hurtful.  It's as if no matter what I ever do, I will never truly be my own person in my mother's eyes.  She will never get to see who I have become.  She will never enjoy me as her daughter.  My personality, my emotions, my thoughts are an affront to her.  If anything unique and apart from her is seen in me, it is a problem meant to be squashed.  I knew this was an issue, but had secretly hoped that one day things would change.  The prosecutor reminded me that although things could change one day, I need to live my life as if it doesn't matter if they never do.
It took me a couple of days to digest all of this and get to a point that I can live with.  I know my mother needed to be stopped.  I hope that she gets some real help.  I also know that regardless of whatever she does or does not do with her life, mine will go on.  And I will enjoy it.  To the fullest.  I deserve it.  And honestly, especially after some of the things I read on others' blogs, I know that my life is good.  I know I am changing the pattern in my family for the better.  I will continue to look to the positive and refuse to wallow in the past.  My mother may never truly know me.  I will share what I have to offer with everyone in my life and trust that my unique gifts will be accepted and appreciated by those who are meant to receive them. 

Tuesday, November 2, 2010

Can't Resist

Before it all goes down, I just have to get my 2 cents or so in on this historic midterm election.  I'm going to avoid pettiness or any urge to say I told you so.  (I'll just be not-so-secretly doing a happy dance all over the joint!) 
So all I have to add to this event is this: I would so much rather be represented by a closer to typical American, not perfectly polished, not a professional political manipulator.  The best person for any job is someone who takes in information, makes sound decisions, and tries diligently to do their best at said job.  I hope the results of this election can help to get our country on a track to actually be a place where average people can contribute in real ways to our wonderful historic tradition.
If you voted, thank you for fulfilling your honorable duty.  If not, I hope you feel more compelled to do so in the future.

Thursday, October 14, 2010

Free To Live

A conversation with a friend, brought on by the story from Chile, inspired today's blog posting.
We spoke of pleasant surprises.  Like the fact that those men all seem astonishingly well, considering the ordeal they have just been through.  I am so happy and thankful for all of them.  What strength from within they have demonstrated for the world.

Do you ever surprise yourself?  It seems I do that a bit lately.
I never used to.  For years & years I thought I knew myself so well.  I liked to say that I felt as if I had been the same person with the same thoughts since I was about 12 years old.  I thought, 'Well, I guess I'll feel and think this way even when I'm 90.'  I know that's kind of weird.  I mean, people are supposed to change over time.  And even though it's true that I was a pretty precocious kid, I now know just how ridiculous that idea was.
So one day, I turned 30.  No, seriously.  It was like a light switch got flipped.  I realized, in what seemed like one giant flash, that maybe I wasn't quite as familiar with myself as I had assumed.
This person that I thought I knew so well suddenly had entirely new perspectives and desires, that either changed what I thought I knew or expanded certain aspects of myself in directions I never saw coming.
I like to think that I didn't go through the gradual changes that most people do during adolescence and early adulthood because I didn't feel safe to do so.  So it all came on with a flood of startling surprise. 
This rapid process was interesting to say the least.  Within a few weeks it was as if I had met myself for the very first time.  Definitely an odd sensation.
Some people were amazingly happy for me.  Others got left in the dust.  I wish I could say I was sorry for that because it feels like I should have been sorry.  But I wasn't.
I was just so free.
Free to have my own opinions and actually know why I have them.
Free to pursue my own interests without having to explain them to anyone, unless I wanted to.
Free to make my own mistakes.
Free to live my own truths.
Free to belly dance, free to take gourmet cooking lessons, free to explore old childhood loves with completely new eyes. 
Free to live bigger than I ever imagined. 
I never knew how small my world was, until I allowed myself to outgrow it.  My husband got a whole new wife.  Good thing he liked her!
So it looks like the winds of change are bringing more than just Autumn this year.
I've heard it said that people's tastes change about every 7 years or so.  Looks like I'm right on time...

My friend and I ended the discussion that brought on this entry with these thoughts:  Do you ever really know what all could be hiding inside yourself?  Does it scare you or does it make you feel free?

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